Dare to Think Rare: Acute Hepatic Porphyria (Medison)

Programme

Part 1

Unravelling Acute Porphyria

17.00–17.05

Welcome – Prof. Manisha Balwani, Icahn School of Medicine at Mount Sinai, New York, USA

17.05–17.35

Acute Hepatic Porphyrias: an update on diagnosis and management – Prof. Manisha Balwani, Icahn School of Medicine at Mount Sinai, New York, USA

17.35–17.50

Insights into AHP Patient Journey: the importance of awareness and advocacy – Mrs. Sue Burrell, British Porphyria Association, UK

17.50–18.00

Q&A

Part 2

Real-world case presentation & panel discussion / Moderator: Prof. Manisha Balwani

18.00–18.15

Case 1: Symptomatic high-excreter or recurrent-attacks? Definition and treatment options – Dr. Yonatan Edel, Assuta Medical Center, Ashdod, Israel

18.15–18.30

Case 2: Disease course and pregnancy in a female patient – Dr. Lauma Jaunozola, Pauls Stradins Clinical University Hospital, Riga, Latvia

18.30–18.45

Case 3: From continuous attacks to full remission – Dr. Robert Wasilewski, Institute of Hematology and Transfusion Medicine, Warsaw, Poland

18.45–19.00

Q&A

 

 

This medical meeting is organized and funded by Medison

November 2024 I PL-GIVO-015-10_2024 I GVL0013

Reg.number: EE090_GVL_11/2024

 

Lisainfo ja registreerimine SIIN

 

Medison Pharma Estonia OÜ

Sõpruse pst 145, Tallinn 13425.